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Original Article

J Korean Gerontol Nurs. 2014 Dec;16(3):242-254. Korean.
Published online Dec 31, 2014.  http://dx.doi.org/10.17079/jkgn.2014.16.3.242
© 2014 Korean Gerontological Nursing Society
Factors Associated with Family Caregiver Burden for Patients with Dementia: A Literature Review
Suk Jung Han,1Seyune Lee,2Ji Yeon Kim,3and Hongsoo Kim*4
1Department of Nursing, Samyook University, Seoul, Korea.
2Graduate School of Public Health, Seoul National University, Seoul, Korea.
3Korean Institute for Health And Social Affairs, Sejong, Korea.
4Graduate School of Public Health, Seoul National University · Institute of Health & Environment, Seoul National University, Seoul, Korea.

*Corresponding author: Kim, Hongsoo. Graduate School of Public Health, Seoul National University, 1 Gwanak-ro, Gwanak-gu, Seoul 151-752, Korea. Tel: +82-2-880-2723, Fax: +82-2-762-9105, Email: hk65@snu.ac.kr
Received May 12, 2014; Revised September 24, 2014; Accepted November 15, 2014.

This is an open-access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.



The aim of this study was to review studies on factors related to dementia caregiver burden (CB) in Korea.


By a literature search of five major health and social science databases including Pubmed, a total of 45 quantitative studies published between 2001 and 2013 were identified. A comprehensive review was conducted guided by the Pearline's Stress Process Model.


All the studies were cross-sectional studies using convenience sampling methodology and multi-variate regression analyses was conducted in only 15 studies. Almost three fourth of the studies adopted Zarit's Burden Index as the instrument to measure CB. Activities of daily living, cognitive factors including cognitive impairment and behavioral problems, and caregiver's self-rated health were the factors examined, and which were negatively associated with CB. Social support, family function, and family relationship were also all negatively associated with CB, but the measures of these independent variables varied across studies. No sociodemographic factors of dementia patients were associated with CB, but women caregivers reported higher CB than their men.


More methodologically rigorous studies on dementia CB in Korea are necessary. In particular, further investigations on the impact of family role and caregiving context on CB are recommended.

Keywords: Caregivers, Burden, Dementia, Aging, Korea.


Figure 1
The framework for review based on Pearlin's model of caregivers' stress process.


Table 1
General Characteristics (N=45)

Table 2
Instruments Measuring Caregiver Burden (N=45)

Table 3
Summary of Factors Affecting Dementia Caregiver Burden (N=15)


This study was supported by a grant of the Korea Health technology R&D Project, Ministry of Health & Welfare, Republic of Korea. (Grant Number: HI13C2250)

1. Bae KY, Shin IS, Kim SW, Kim JM, Yang SJ, Mun JU, et al. Care burden of caregivers according to cognitive function of elderly persons. J Korean Soc Biol Ther Psychiatry 2006;12(1):66–75.
2. Cho E, Cho E, Kim S. Effects of family relationship on burden of family caregivers of older adult with dementia. J Korean Gerontol Soc 2010;30(2):421–437.
3. Colombo F, Llena-Nozal A, Mercier J, Tjadens F. Help wanted? Providing and paying for long-term care. Paris: OECD Publishing; 2011.
4. Epstein-Lubow G. Family caregiver health: What to do when a spouse or child needs help. Med Health R I 2009;92(3):106–107.
5. Etters L, Goodall D, Harrison BE. Caregiver burden among dementia patient caregivers: A review of the literature. J Am Acad Nurse Pract 2008;20(8):423–428.
6. Ingersoll-Dayton B, Starrels ME, Dowler D. Caregiving for parents and parents in law: Is gender important?. Gerontologist 1996;36(4):483–491.
7. Jang YO, Jeong SL. The influences of family resources on caregiving stress for dementia elderly in homemakers homemakers. J Korean Home Econ Assoc 2004;42(6):73–88.
8. Karttunen K, Karppi P, Hiltunen A, Vanhanen M, Valimaki T, Martikainen J, et al. Neuropsychiatric symptoms and quality of life in patients with very mild and mild Alzheimer's disease. Int J Geriatr Psychiatry 2011;26(5):473–482.
9. Kim JS. Health status of women caregivers and negative and positive impacts of family caregiving. J Korean Acad Nurs 2000;30(3):632–646.
10. Kim MD, Hong SC, Lee CI, Kim SY, Kang IO, Lee SY. Caregiver burden among caregivers of Koreans with dementia. Gerontology 2009;55(1):106–113.
11. Kim YT, Cho DH. Effect on the care giving burden in terms of family relation's satisfaction of client's family of long-term care insurance-focused on the home based services. J Welf Aged 2012;56:115–136.
12. Kong EH, Cho E, Song M. The burden and caregiving satisfaction of primary family caregivers of older adults with dementia: Cultural and non-cultural predictors. J Korean Gerontol Soc 2009;29(2):701–716.
13. Kwon JD. The determinant model of caregiver burden in caring for the demented elderly in Korea. Health Soc Welf Rev 1994;14(1):1–16.
14. Lee MH. Caregiving for dementia-affected older adults and caregivers' stress process. J Welf Aged 2006;14:3–19.
15. Lee SJ. A study on the family caregiving with demented elderly person. Korean J Local Gov Adm Stud 2004;18(2):127–142.
16. Lee YK. Implications of and future development plans for the newly-introduced special beneficiary group for older people with dementia in long-term care insurance in Korea (Health·Welfare Issue & Focus No. 245). Seoul: Korea Institute for Health and Social Affairs; 2014 Jun 20.
17. Lim YM, Son GR, Song JA, Beattie E. Factors affecting burden of family caregivers of community-dwelling ambulatory elders with dementia in Korea. Arch Psychiatr Nurs 2008;22(4):226–234.
18. Llanque S, Savage L, Rosenburg N, Caserta M. Concept analysis: Alzheimer's caregiver stress. Nurs Forum. 2014
Advance online publication http://doi.org/10.1111/nuf.12090
19. Ministry of Health and Welfare. The 2nd (2013-2015) national comprehensive plan for dementia care in Korea [Hangul Word Processor (HWP) file]. 2012 Jun 30;Retrieved September 17, 2014
from http://www.mw.go.kr/front_new/al/sal0301vw.jsp?PAR_MENU_ID=04&MENU_ID=0403&page=113&CONT_SEQ=274723
20. Novak M, Guest C. Application of a multidimensional Caregiver Burden Inventory. Gerontologist 1989;29(6):798–803.
21. Oh BH. Diagnosis and treatment for behavioral and psychological symptoms of dementia. J Korean Med Assoc 2009;52(11):1048–1054.
22. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist 1990;30(5):583–594.
23. Schulz R, Martire LM. Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. Am J Geriatr Psychiatry 2004;12(3):240–249.
24. Song MY, Choe GG. The decision factor on primary care-giver's burden for senile dementia elderly. J Welf Aged 2007;37:131–160.
25. Van Durme T, Macq J, Jeanmart C, Gobert M. Tools for measuring the impact of informal caregiving of the elderly: A literature review. Int J Nurs Stud 2012;49(4):490–504.
26. Vitaliano PP, Young HM, Russo J. Burden: A review of measures used among caregivers of individuals with dementia. Gerontologist 1991;31(1):67–75.
27. Whitlatch CJ, Schur D, Noelker LS, Ejaz FK, Looman WJ. The stress process of family caregiving in institutional settings. Gerontologist 2001;41(4):462–473.
28. Wolfs CA, Kessels A, Severens JL, Brouwer W, de Vugt ME, Verhey FR, et al. Predictive factors for the objective burden of informal care in people with dementia: A systematic review. Alzheimer Dis Assoc Disord 2012;26(3):197–204.
29. You KS. Understanding and care of dementia. J Korean Public Health Nurs 1996;10(2):1–14.
30. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist 1980;20(6):649–655.
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